Craniosynostosis is a birth defect that affects 1 in 2000 babies

Craniosynostosis is a birth defect that affects 1 in 2000 babies

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Types of Craniosynostis
Types of Craniosynostis

Craniosynostosis Awareness is a passion of mind because my son was born with this. Craniosynostosis is a birth defect that affects 1 in 2000 babies. Fortunately, our pediatrician knew enough about cranio to send us to a neurosurgeon. Blake was officially diagnosed with craniosynostosis with trigoncephaly at about 3 months old. Many families aren’t so lucky.

Anyhow, because Blake’s metopic (forehead) suture was prematurely closed and his head couldn’t grow normally, his head had a triangular shape. Apart from the stigma of an odd-shaped head, craniosynostosis can potentially cause brain damage in severe cases.

Because of this, we elected for Blake to have surgery.   See his journey in photos.   Learn more about  craniosynostosis on http://www.craniokids.org

 

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