Craniosynostosis Awareness is a passion of mind because my son was born with this. Craniosynostosis is a birth defect that affects 1 in 2000 babies. Fortunately, our pediatrician knew enough about cranio to send us to a neurosurgeon. Blake was officially diagnosed with craniosynostosis with trigoncephaly at about 3 months old. Many families aren’t so lucky.
Anyhow, because Blake’s metopic (forehead) suture was prematurely closed and his head couldn’t grow normally, his head had a triangular shape. Apart from the stigma of an odd-shaped head, craniosynostosis can potentially cause brain damage in severe cases.